Being sick and in pain is hard.
Harder than almost anything else I have struggled with in my 32 years. Having a body that no longer functions as it should takes a lot on your emotionally and physically.
Here are some things that helped me:
How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers by Toni Berhard This book is amazing. I have begun to recommend it to everyone I know who is chronically ill. It deals with issues I haven’t found in other books (grieving for the loss of the things you loved, dealing with not being able to work, processing that there may not be a cure for your particular illness) You can check out my review of the book here.
When Things Fall Apart: Heart Advice for Difficult Times by Pema Chödrön
This book has seen me through many hard things. Pema Chödrön is a Buddhist nun along with being masterful writer and her words are absolutely amazing at helping us each view difficult situations in a new light. I often buy this book for friends struggling through hard stuff.
Total Recovery: Breaking the Cycle of Chronic Pain and Depression by Dr Gary Kaplan
This book is by my dear sweet chronic pain dr. He has an immense amount of compassion and understanding of chronic pain and goes above and beyond to challenge readers to look at pain in much broader perspective. He also discusses research he has done and new ideas he has about the origin of chronic pain.
Why Cant I Get Better? Solving the Mystery of Lyme and Chronic Illness by Dr David Horrorwitz
I bought this book after being sick with Lyme for a few years. It is a thick comprehensive read and covers A LOT of bases including the many diseases Lyme can mimic and how to discern if it is Lyme or RA/MS/Fibromylagia/Parkinsons etc. It also covers pain, herxheimer reactions, and treatment options. If you think you have Lyme or if you have already been diagnosed, this book will help you.
The Top Ten Lyme Disease Treatments: Defeat Lyme Disease with the Best of Conventional and Alternative Medicine by Bryan Rosner
This was the very first book I ever read on Lyme. My mom bough it for me the day I started my first antibiotic at a local health food store. It has become the book I recommend to anyone who is newly diagnosed. It does a fantastic job of explains various treatments and REALLY does a great job of explains what antibiotics do on a more complicated level in terms of Lyme and its many cycles. There is no RIGHT way to treat Lyme as each body is different and I think its important for people to understand all the various treatment options.
Explain Pain by David Butler
A friend let me borrow this book several years ago after her PT had lent it to her. It is a FANTASTIC book about chronic pain.
You can find a chronic pain meditation playlist I made last year here
Lyme Disease websites:
Chronic pain & illness blogs
–the invisible warrior– my friend kelly’s blog. she deals with CRPS and Fibromyalgia and posts a lot of great stuff.
–chronic babe-this is an amazing blog/community for people who struggle with chronic pain and illness
–the princess in the tower– i have only recently begun to follow this blog but it is truly fantastic and a great resource for CRPS and other chronic pain conditions.
–esme wang– this lady is amazing and her writing is equally amazing. she also has chronic lyme and shares also about dealing with schizophrenia.
–chronic sex– great site on how chronic illness and pain affect your sexuality and relationships (including the one you have with yourself)
–counting my spoons-great blog about being chronically ill.
–noonegetsflowersforchronicpain– another really awesome blog discussing dealing with chronic pain.
–living grace– a beautifully written blog about faith and having Chronic Lyme.
–a life well red– finding beauty and grace while living with invisible chronic illness