I recently had to help guide a good friend (hang in there girl <3) through an ER visit for a BIG NASTY CRPS flare up and thought it might be helpful to share what has helped me with my own ER visits for my severe chronic pain from CRPS and Late Stage Lyme Disease. I have been… Continue reading 10 tips for what to do when you have chronic pain and you have to go to the ER
This was me 5 years ago May 28th. Sweaty, tired, sore, and incredibly proud. My 2nd mile race. It was also the last race I ever ran (and the speediest to boot). This photo means a lot to me for a lot of different reasons. I was always the couch potato, the book worm, the… Continue reading this body can do hard things
Hey hey hey! So today I wanted to talk about my life post-ketamine infusion. Its been a hell of a ride thus far, both hard and amazing. I know I touched a bit on it in a previous post but wanted to get a bit more in depth. I was discharged after 6 days. I begged… Continue reading post ketamine dreams
Hey friends and loved ones! As promised I am writing all about my first inpatient ketamine infusion in hopes of helping anyone who is interested in getting one along with continually educating people about CRPS and chronic pain. Its a long one guys so buckle up! I wanted to begin by giving a clear picture… Continue reading my first ketamine infusion for crps
some people when they hear your story. contract. others upon hearing your story. expand. and this is how you know. -nayirrah waheed Hey friends. Man oh man, I just don’t know how I got so lucky to have the incredible support system that I have. For all the doom and gloom moments I have… Continue reading this is how you know
Last Sunday my left upper leg started to “hurt” the way the rest of the ares where I have CRPS hurt. That deep bone pain, the unbelievable pressure, the burning that never ceases. It immediately alarmed me but I am really trying to practice mindfulness so I said to myself “Ok…lets just observe“. I’ve been… Continue reading this body that lives
Its hard to believe that my 31st year is coming to a close 4 days from now. For the past 4 birthdays, I have hoped with every birthday that the next year would be the year I got better. Unfortunately the year of 31 has left me getting sicker beyond anything I could have imagined. I’m so… Continue reading 365 days
I have been oscillating as of late between being ok with where things are at in my life and then all of sudden really not ok. Although I have been sick for a few years, things have taken a sharp detour off the tracks for the past 5 months and I am dealing with some… Continue reading learning the language of letting go.
Before I developed CRPS and the Lyme, I had very little experience with any kind of health issues. I had never broken a bone or had a surgery besides ear tubes at age 6. I got sick maybe once a year and had no real experience with chronic pain minus some running injuries I accrued from poor… Continue reading what to do (and not do) when you have a chronically ill loved one
This blog has been a long time coming. I have always loved writing since I was young. From 19 to 25 I shared my life on a semiprivate blog (cough live journal cough). Then things shifted for whatever reason and I found myself unable to write about what was going on. Years passed, things changed. I… Continue reading well here we are.