Accomplishments aren’t always big. It’s not always running 26.2 miles or hiking a mountain or even writing a book. It’s often one small moment in time or a hurdle that others wouldn’t think so daunting. It’s pretty incredible when we place ourselves in someone’s proverbial shoes and see what you might breeze through but truly… Continue reading small victories, small losses
This is the first photo I publicly shared of me in a wheelchair. It was my second non-medical outing I had gone on since I lost the ability to walk normally in February. The very idea of people seeing me in such a vulnerable personal place was so anxiety inducing. I of course chose our town’s… Continue reading living out loud
My mother used to tell me that every Halloween, before the night was over and before I was bouncing off the walls chock full of sugar, I would already be planning my next costume. No matter that the night had barely begun, my head was already 365 days into the future considering whether I wanted to… Continue reading Making peace with the present
Hey hey! This is the second part of a two part series about CRPS/RSD treatment options. You can find the first part about medications and supplements here. If you don’t know what CRPS/RSD is, please go visit this page first as it explains more about this extremely painful and debilitating condition. There is NO cure… Continue reading Putting Out the Flames: CRPS/RSD Treatment Options #2
One of the most meaningful parts of blogging is being able to create things that help others. It’s truly one of the most gratifying feeling when people message me on instagram or email me to say that a post helped them. I am writing this post in hopes of helping a lot of people. Many… Continue reading Putting Out the Flames: CRPS/RSD Treatment Options # 1
Well 2017 is here and the year is starting off with a bang. Just not the bang I had hoped for. During my 3rd ketamine infusion October 11-16 I really thought that I was hitting a turning point with my health. I had 3 days of no pain during the infusion which was monumental for me given… Continue reading new year. new plan.
One of the hardest parts of having Complex Regional Pain Syndrome also known as Reflex Sympathetic Dystrophy is the fact that it “spreads” which essentially means that your brain for whatever reason can start to send the “wrong” aka PAINUL nerve signals about other body parts beyond the original area where you first developed CRPS/RSD. This means… Continue reading when the road gets rougher: how to deal with a CRPS spread
Hello there! I wanted to start off this post by extending a warm welcome to anyone who may be new to my blog as I am assuming that this post about “ketamine for CRPS and other chronic pain conditions” may pull in new readers who are curious and/or desperate for relief from chronic pain. So before I say anything else, let me… Continue reading K is for ketamine: all about ketamine and CRPS/ chronic pain management
This is the last photo I have me of me standing. I’ll be at the 2 year anniversary of becoming disabled February 5th. It’s still honestly hard to believe its been that long. When it all happened I wanted SO badly to believe this was just an insane terrible CRPS flare up. I don’t even… Continue reading pain is important
Sunday afternoon during my ketamine infusion, the wonderful man Robert who brings 3 east their meals stopped by my room to see what I might be able to eat for dinner. He is quite possibly one of my favorite employees at UVA Hospital and every time I am admitted I am so excited to see him because… Continue reading i haunt myself. i heal myself.