about me

Hey hey hey Im Genevieve!

Welcome to my blog Ship With No Sails.

Here at my blog I write about both struggling and succeeding with chronic illness and pain. I share about the long process of learning to love my body after battling with anorexia nervosa on and off for two decades. I talk about the long process of coming to terms with being in a wheelchair after being a runner. It’s not all doom and gloom though! I also write about fun stuff like makeup, skincare, and finding the perfect 5$ lipstick.

This blog is about finding your path when the road is rocky and you have lost your map.

A little about me:

I am a 33 year old somewhat tattooed and extremely freckled gal living in central Virginia with my husband and two crazy pups.

I love reading, knitting, body positivity, writing, yoga, drag queens, photography, poetry and intersectional feminism. I own too many cardigans and too many books. I delight in all salty crunchy carbs and will never turn down an iced coffee on a hot day.

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For over 5 years I have been dealing with several debilitating chronic illnesses.

In October of 2011 I developed Complex Regional Pain Syndrome in my left foot.

CRPS is ranked as the most painful disease by the McGill Pain Scale and the ongoing intense pain has had debilitating effects on my entire life.

 Since 2015 it has spread up my entire left leg to my hip, into parts of  my right foot, and then in late 2016 the CRPS also spread into my entire left arm/ hand and right bicep. Due to CRPS I have lost the ability to drive, work, and can no longer even walk normally. For the past two years I have been wheelchair dependent but am working to relearn how to walk.

Unfortunately in March of 2012 I  also became sick with Late Stage Lyme Disease with a coinfection of Bartonella. Things were further complicated by also developing Chronic Inflammatory Response Syndrome due to extensive exposure to mold and the neurotoxins it releases.

I battled Lyme and Bartonella for several years but was able to get into remission with both in 2015.  Sadly the Lyme Disease came out of remission in mid-2016. The bacteria and mold biotoxins have done significant damage to many parts of my body including my small fiber nerves and the frontal lobes of my brain.

You can read more about my journey with my health here.

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On to the good stuff:

I have been with my lovely husband Sean since October 2010 and married since July 7, 2012. I couldn’t ask for a kinder more thoughtful partner. Isn’t he a cutie?!

My very favorite face. Over 4 years together and he still makes my heart flipflopflopflip.
my wonderful and handsome husband.
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our engagement shoot. photo by Purple Fern Photography (2011)
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photo by Doug Stanford • Moving + Still Images (2015)

We are the lucky owners of two zany dogs.

Roxy is a miniature dachshund who has the ability to be super lazy or super sassy depending on her mood. Pip is a chocolate lab/ great dane mix meaning he is super big and super silly.

Together they are a funny looking pair and make our lives really wonderful.

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I have a bachelors in psychology with a minor in gender studies from George Mason University but I have been a master esthetician and makeup artist since 2008.

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photo by R. Gonzalez Photography (2012)

I was even lucky enough to own my own business for a few years before having to close it due to health issues. I am very grateful to love what I do and hope to do it once again when I am feeling better.

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photo by Aaron Riddle Photography (2014)

Making people feel good about themselves is my passion.

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The name of my blog comes from the song Slow Pony Home  by The Weepies who are my favorite band.

“setting free the anchor and looking past the shore
it’s a sea of horses on ships with no sails, no motors, no oars”

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photo by Stephen Carroll Photo Fiction (2012)

So welcome to my blog and my life! 

I hope you will stick around for awhile. 

xogen

I am a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com.

 

10 thoughts on “about me

  1. Fabulous! I’ll tell your cousin Chris about this lovely blog you shall accomplish great things with. I have sjogren’s and fibro w/ other lovelies. Somedays the pain is off the charts. I totally despise how I can’t do what I used to be able to. Love the pics too. Keep writing!

    1. Thank you for commenting and checking my blog out! So sorry to hear that you deal with chronic illness too. Hope you guys are doing well!

  2. Hi,
    I just wanted to let you know I had stumbled across your blog completely unknowingly and than my computer crashed. I had no way of finding your blog as I had just stumbled across it. Well lo and behold, two weeks ago I was on Instagram on lunas page and was commenting on a picture when all of a sudden I saw your face… I thought that it couldn’t be possible! So I checked it out and it was you! I absolutely love your blog! Your story is so inspiring and it simply cannot be chance the way I’ve come across you twice! I look forward to all your future stories and entries, you have a follower in me 🙂

  3. Having just checked out your blog, I can promise you the admiration is mutual. Your blog is utterly fab – looking forward to following you! (PS – I have tat envy too.) x

  4. You are such a beautiful and magnificent soul Genevieve. You have been the biggest inspiration in my life ever since I found this blog and I can’t thank you enough. Whenever the pain and isolation of illness get me down, I come to your blog, and reading your story and your fight shows me that I’m not alone. You are a true hero in every way, and your inner light will illuminate the world. You have already brought so much light into my life, and it is an honor to follow your journey. Thank for sharing your voice <3

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