chronic illness · chronic pain · crps · lyme · writings

#besides my diagnosis

I am doing my best to be more immersed in the chronic illness online community both for support AND to help promote this little blog. I am now a part of the chronic illness blogger community and am meeting a lot of rad people. The girl with five lads and fibromyalgia came up with a neat idea about discussing who you are beyond your illness which is such an important thing to recognize. We are all more than just patients, we are people with passions and interests and lives that aren’t just doctor visits and medications.

1. #besidesmydiagnosis the three things about my appearance that I love in the mirror?

Processed with VSCO with b5 preset

 This is a hard one for me but I really do love my loooong lashes, my freckles, and my collarbones. Working on loving my body.

2. #besidesmydiagnosis the things I have read most are?

 

I have reread The Secret History, Middlesex, and White Oleander more times than I can count. If you haven’t read these books PLEASE do. They are all beautifully written and are dense delightful reads.

3. #besidesmydiagnosis my favourite comfort foods are?

 Pizza, Take 5 candy bars, and French Toast ALWAYS make me happy (even though they are ALL terrible for my gastroparesis)! OM NOM NOM!

4. #besidesmydiagnosis my favourite past times are?

Wellllll since I don’t leave the house more than once a week my past times right now are laying on the couch reading stuff online like reddit.com and jezebel.com ANDDD watching grey’s anatomy. I also love reading blogs and writing in my own blog obviously. Knitting is another great way I like to pass my time and when I feel well enough, occasionally some yoga in my wheelchair.

Sunday morning with Mama?

When I was not sick I loved running, yoga, spin classes, knitting, walks with my husband, and working 🙂

FullSizeRender-1

5. #besidesmydiagnosis my biggest accomplishment since illness is?

 Owning my own business and working part time for a few years after I was diagnosed is something I am VERY proud of. It was extremely hard and though I cannot work anymore, I look back on all that I accomplished even though I felt terrible and struggled to even work 2-3 days a week. Booking 30 weddings my first year open is pretty awesome. 

281478_10151269490810990_803138347_n

Since I can’t work now, I am pretty proud of this blog and having my writing published quite a few places with hopes for more.

6. #besidesmydiagnosis I feel my best quality is?

 I  always try to see the best in people. It can be a flaw and I know sometimes I try so hard to see the good that I don’t also recognize the “bad” or I excuse the bad too easily. That being said, people always tell me that I notice good in people and that makes me happy.

7. #besidesmydiagnosis my motto/mantra to live by?

The fact is that no matter how crazy or crappy my life is, there’s someone who wishes they could have what I do. I have a home, food in my fridge, running water, a partner who adores me, a wonderful support system, and a great dr. There’s people out there who don’t have any of that. I don’t want to ever forget what I have and get stuck in thinking that I have it the worst out of everyone. Even when my pain is level 12 I know someone else is suffering in ways I can’t imagine. Even when I am deeply depressed that I have been using a wheelchair every day since late April 2015 I know theres someone who is bedridden and would love to use a wheelchair.  Thinking YOU and you alone have it the worst is dangerous thinking and something I don’t like to participate in.

8. #besidesmydiagnosis I would love to travel to?

 Oh gosh definitely to see my brother and sister in law in Idaho, California, and the Great Sand Dunes in Colorado. I would also love to go out of the country to see Italy and Greece. I would also love to go back to Hawaii.

9. #besidesmydiagnosis my guilty pleasure is?

 Trashy tv.  Sean HATES reality TV but I LOOOOOVE it. Give me some Real Housewives, some Love & Hip Hop: Atlanta, and Intervention and I am a happy gal. Add in some coffee and I am in HEAVEN.

10. #besidesmydiagnosis I have many dreams and ambitions such as?

Oh I have soooo very  many. I want to walk, drive, and work again. I want to be a mom. I want to become a yoga instructor. I want to reopen my business. I want to become a really good cook and make delicious meals for Sean. I would maybe one day like to write a memoir.

Don’t ever forget all things you are beyond the illnesses. You are more than your body. You are more than just a sick person.

Thanks to The girl with five lads and fibromyalgia for this great idea!

xogen

2 thoughts on “#besides my diagnosis

  1. Does your site have a contact page? I’m having trouble locating it but, I’d like to shoot you an email.

    I’ve got some creative ideas for your blog you might be
    interested in hearing. Either way, great site and I look forward to seeing it improve over time. http://www.yahoo.net

Leave a Reply

Your email address will not be published. Required fields are marked *